jenny wood

Breast cancer post #5- bald is beautiful?

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There is no doubt that having breast cancer makes me question what’s important. I’ve always lived life to the fullest, perhaps because both of my parents died young (biological father- 23 and mother- 54). Perhaps it’s just my personality. Having cancer takes my focus a step further however. It is probably a phase I’m going through but I have little interest in the usual life pleasures right now. I’m finding it more important to connect with people. You should see my diary!

Are split ends important? A broken finger nail? Work? Home decorations? Shopping? Well no. I’m sure it’s a temporary state of mind. In saying that, I have to say yes… losing my hair does mean something. Call me vain but I’m not sure that it’s all about vanity.

It’s very confronting to go to a wig shop and try on wigs (which made me look like a supermodel I have to say LOL). It’s even worse to have your hair tucked away and a ‘chemo hat’ planted on your head. I didn’t look like me. I looked like a cancer patient. I know hair isn’t everything it’s just on the outside but it confronted me with my illness in a very powerful way. It’s just as well the lovely lady in the shop was prattling away in my ear and distracting me from the sight.

This week I had my hair chopped to shoulder length. Perhaps I’ll get 1cm cut every day for the next 3 weeks! In the meantime, I’m designing my own hats so watch this space. I’ve never been a hat person (they don’t stay on my head) so that will be a new fashion statement. Sophie and I went looking at hats (and other stuff) last night. I didn’t buy any but tried on a few… You like?

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Breast cancer post #4

Woo hoo I’ve finally found some information on the clinical trial I’ll be taking part in that isn’t written in gobbleldy gook!

If you’re interested, have a read. It’s actually quite ground breaking treatment for a type of cancer which previously had little hope. The article is referring to the ‘guinea pig’ phase, which is different to what I am doing as I am on a trial phase. The trial phase is the last step before they implement this strategy as a standard treatment for people with Triple Negative Breast Cancer (TNBC). http://www.breastcancer.org/research-news/20101005-3

This article on Triple Negative breast cancer is also informative but written in plain speak: http://www.breastcancer.org/symptoms/diagnosis/trip_neg/behavior

I begin treatment on Tuesday the April 1st (April Fools day), providing all the tests are done and the paperwork sorted in Italy (!) by then. In the meantime I’ll be doing more tests. Yay! Not. So I will be put into a randomized group and get one of two Nab-paclitaxel type drugs. So group A uses one Nab-paclitaxel drug and group B uses the other. I will know which group I’m in but I can’t choose. Then after that treatment I will begin standard chemo treatment and then surgery and radio therapy.

Sounds like a plan?

Keeping positive

People keep telling me to keep positive but how am I supposed to do that when I have Triple Negative breast cancer? That means I need to be triple positive just to be neutral so that’s a lot to ask LOL.

Actually… I am feeling ridiculously positive. Not that I’m in denial, it’s just that I have absolutely no doubt I’m going to kick it. That could be the power of prayer and being surrounded by such amazing friends and family and whatever other reasons we can come up with but it just isn’t in my radar not to kick it.

My Mum was my age when she got cancer (53) and died at 54 a few months later, so that’s a bit scary but I will not let that take over me.

It might be called Triple Negative but I’m feeling triple positive.

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I finished this artwork yesterday. It was started in the middle of the night about 5 days ago and reflected how I felt at the time. The dead of night does that to you. Although it isn’t a reflection of where I’m at right now, it does highlight that first couple of days where I wanted to curl up in a ball. When I look at it now I remember the feeling but it isn’t something I can identify with (today).

I’m sure that as I go along I’ll meet an array of different feelings. Maybe my positive hype will wane a little when I’m in the middle of Winter (urgh), chemo and the long haul is still ahead.

My brain is already in a kind of fog. It feels like the world is rushing by me and I’m here in my foggy place. To top it off I have to come off HRT which is a bit nasty and bound to make the fog worse. Has anyone got an anti fog machine?

Todays funny MOTH story

Sorry MOTH… but you do keep me (and everyone) entertained. As a typical MFB firefighter, he is used to getting a ribbing. It’s all part of the culture. So I’m sure he can take it and he knows I love him dearly. Now on with the story…

You know he doesn’t like sitting still right? Well hospital appointments are our new worst nightmare. I’m about to make him an activity pack for our waiting times. Colouring books, pencils, snacks and Valium. Oops… sorry I didn’t mean Valium that just slipped in there.

This week, he was sitting on a bench seat in the radiology waiting room and a woman came up to him and said ‘could you please sit still as your jiggling is making it hard for me to send a text message’. 

Some people just need a perfect world LOL.

Breast cancer post #2

I’ve had a very busy and social weekend with my wonderful family and friends. It can be exhausting to experience the emotion of others when my own emotions are soaring in different directions but I am finding the courage to do that and it’s getting easier by the day.

People have been very supportive AND practical which is a huge relief to me. Paul,  from Forest Edge Stone, for example, has extended my art exhibition to May 1st (3 extra weeks) for no charge so I don’t have to worry about it. You can find out more about that here. What a man!

It’s odd but I feel surprised by people being emotional. It’s not that I’m not touched (afterwards) it’s just that it confuses me for the first few seconds. I automatically think ‘I wonder why she is upset’. So in true Bredle family (mothers side) style, I’m breaking the ice with humour. It shocks people sometimes but if I can make people laugh I feel happy and so do they. I’m also perfectly comfortable to speak openly about the ‘other feelings’ so it’s not that I’m in denial. Mostly I feel quite enveloped in a calmness and peace, mixed with a positive and fighting spirit and I am touched by the empathy others feel comfortable to show. No behaviour is wrong or right. Feelings are feelings. I have found enough grace to understand that how people react (or don’t react) isn’t always an indicator of how they feel.

So as well as catching up with loved ones… I’ve discovered that there are now half a dozen ex/current Swinburne staff with breast cancer, diagnosed in the last month or so and many who have had it in the past 2 years. I could make comment on that but let’s leave it alone:) I’m catching up with a couple of them for coffee next week so we can support each other.

1901973_753528051337655_193389831_nIn the quiet moments I’ve included a tad of artwork. I began drawing again at 1am Saturday night when I couldn’t sleep. One of them was very bleak and I’m going to ‘bin it’ and others were introspective. The plan is to ‘half complete’ a pile of drawings and finish them off while I’m on the chemo drip.

This one (above) is probably expressing more than my words can say but even though it is ‘sad’ looking, the wings are a symbol of ‘hope’. They are also breast cancer ribbons which are a bit cliche but… meh!

Warning: my humour can be black

So my new plead with the MOTH (Man Of The House) is ‘If you loved me… I’ve got cancer you know’.  So far I’ve asked for a Ferrari, a house down the beach and I asked him to shave his head when I do mine. He was shocked at first but now he is responding with ‘I don’t love you that much’.

Last night we were having dinner with a bunch of my wonderful friends and I extended it to request many things on behalf of others. ‘Colin, if you loved me you would buy Janet a house, Gail an iPad etc etc.’

Anyone who wants to get in on the act can slip me a commission of 25%. Now that I’ve got no job I’m becoming entrepreneurial.

French Lentils have the power

The things I love to eat (apparently)…

Broccoli, Walnuts, Beans, Garlic, Mushrooms, Broccoli sprouts, Pomegranates, Lentils, Blueberries, Spinach, Eggs, Salmon, Rye bread (whole rye flour), Sweet potato (all yellow veges and fruits), Kohlrabi, Whole grains, Flaxseed

No high fat dairy or processed meat

Keep off the processed food

NO SUGAR

LOW CAEBS

I figured if I looked up power food for fighting cancer and stick to a diet (loosely) I will have some kind of control over my body. So I printed out the list above. The MOTH has been very diligent and wanting to do the right thing by me (apart from the Ferrari) and went on a hunt to buy everything on the list. Some of those things were pretty challenging but he also managed to make the ‘normal’ things more difficult. He couldn’t just buy lentils from the supermarket. He had to buy FRENCH LENTILS from the health food shop. They are sure to work better. So we had very posh FRENCH LENTIL BURGERS for tea. Voila!

I wondered why Rye bread always has wheat flour in it so I decided to make my own ‘cardboard-tasting-solid-as-a-brick’ loaf. It didn’t rise at all and it made me gag to eat it. All is good. WIth my french lentils and my cardboard brick Rye loaf I can conquer all.

Tests and stuff

Today I have a Gated Heart Pool Scan and a full body CT scan. The heart one is to check if it will stand up to one of the chemo drugs which they use in the trial and the CT scan is to check for cancer locations in soft tissue. I had the bone scan last Friday and we should get the results when I see the oncologist tomorrow.

I have to have a biopsy next Friday so they can tag the tumour. Perhaps they want to track where I am so I can’t run away (microchip). Then I have to sort out wigs, bras and where and when I will start chemo. I’m happy to be doing the trial (see blog post #1) as it means I will be closely monitored. Shrinking the tumour before removing it just makes sense. So let’s hope and pray that I will be a suitable candidate.

I’m so blessed to have Colin, my kids and their partners and a huge network of family and friends who are all with me on the journey. If I don’t respond to your messages or have that promised coffee it’s not that I don’t appreciate you.

The purpose of this blog is to inspire others and not to get pity. I hope that regardless of tomorrows results I can do that in some way. If not, just let me make you laugh so we can all feel OK about it. Maybe some days I won’t be laughing and you can pay me back;)

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Jenny Wood breast cancer

A good life is when you assume nothing, do more, need less, smile often, dream big, laugh a lot and realise how blessed you are.

2013 Trip to the UK

Leaving on June the 11th 2013, we plan to explore the UK by car in a leisurely 8 week stroll, typical of us Australians who spend so much time and money getting over there we want to make the most of it.

24+ hours in a plane? ‘Aint nobody got time for dat!’

We are excited to catch up with a friend in London and my cousin in Ireland as well as lot’s of time on our own exploring the castles and remote areas including the islands off Scotland. We’ve booked a thatched roof cottage in ‘Sneem‘ in the Cork country of Ireland on the coast out in the middle of nowhere so that should be interesting!

Here’s the itinerary for anyone following us on our travels:

  • 11th June: Leave for London- Arrive 12th
  • 15th June: Ludlow- England
  • 17th June: Filey- England
  • 21st June: Windermere- England
  • 25th June: Edinburgh- Scotland
  • 28th June: Nairn- Scotland
  • 5th July: Isle of Skye- -Scotland
  • 7th July: Oban -Scotland
  • 9th July: -Glasgow Scotland
  • 10th July: Fly to Dublin
  • 11th July:Waterford- Ireland
  • 13th July: Drimnamore (1.5 k from Sneem) – Ireland (no internet for a week… or shops… are there people there even?)
  • 20th July: Galway- Ireland
  • 21st of July: Drumshanbo- Ireland with my cousin Marisa!
  • 22nd of July: Skerries- Ireland (Dublin)
  • 25th July: Fly to Canary Islands- Spain
  • 1st of August: Fly back to London
  • 3rd of August fly home to Melbourne (arrive home at 5am on the 5th of August)