breast cancer

Skin check app warning

Yes I know… using a smart phone app to check a mole on your skin sounds like a stupid thing to do but…

A: I’ve been battling breast cancer and it’s hard to focus on the little things when you’re batting a ‘big’ (pardon the pun) thing. So many little medical issues become insignificant and getting MORE tests is so exasperating.

B: My GP recommended I do this as it is a ‘really good way to track them yourself’.

Skincheck apps have become very popular for checking moles etc for malignancy. I have very olive skin but even so I have a lot of moles and have had a lot removed. The MOTH was told by a mole checker recently that he had ‘too many’ to check and yet he is a prime candidate having been burnt so many times as a youth with his fair skin.

When I asked my GP about this mole 12 months ago he said it looked ok and to check it with this app. I was undergoing breast cancer treatment at the time so he was hesitant to put me through more and in hindsight it DID look ok at the time. It looked NOTHING like the melanoma my Dad had so I must admit I wasn’t too concerned. Dad’s was very small and jet black. Mine was like a small Sultana bran flake… but not as yummy.

So when I checked the mole on my arm using the app recently it was classified as ‘low risk’. I checked it twice but only saved one of the photos. Well that gave me peace of mind for a while anyhow. Let’s get this breast reconstruction surgery out of the way.

While waiting to go into surgery to have my breast reconstruction, an enthusiastic student plastic surgeon saw it on my arm and said ‘I don’t like the look of that’. THANK YOU to her diligence because otherwise I would still be floating around with it on my arm.

I received an apology from the company and have told them that I was wanting to warn them and give them feedback so that they can tweak their app. I am sure they have peoples health in their best interest but even so… WARNING WILL ROBINSON don’t rely on them!

Now I have had a failed breast screen check and a failed melanoma check. How cool am I? I just keep bouncing back and ducking and weaving. I’m living life fearlessly in faith with a sprinkle of caution.

Here is their response…

Screenshot 24:03:2016, 8:42 AM.jpeg

 

 

Update on fatigue

This is a quick update to let you know my test results…

My tests were all clear (yay!) My heart is functioning at 98% of the normal range. (yay) My upper abdominal innards are all excitingly healthy (liver, pancreas, gallbladder, kidneys etc) and my lung is pumping oxygen like a little trouper. Now we have the ‘well what is going on then?’ question. So I see the oncologist on the 23rd Nov and she will do tumour marker tests to see if there are signs of tumour growth (blood test) but I’m sure there is nothing sneaky going on. That’s my final word over my body.

If that’s all clear I’ll try looking at diet etc but I mainly eat Paleo so it’s not like my diet is BAD. It may be that I have a sensitivity. I don’t know. I’m grasping at straws. Sleeping 12 out of 24 hours is just plain annoying.

My GP said my fatigue is too chronic for it to be something minor like ‘over doing it’ or ‘diet’, given that he has checked thyroid, iron etc.

… back to getting the house ready for ‘open for inspection’ today. Stay tuned and thanks for your lovely comments I’m sure it’s all sounding quite boring by now and I’m blessed to have such lovely people sticking around to hear my sagas!

 

The medical maniac is back

People have been asking me why my blog updates have disappeared. To be honest… it’s because I’ve been in ‘limbo land’. Have you ever been in that position where you know things ‘aren’t right’ but you haven’t got a diagnosis and you don’t want to seem paranoid or like a hypochondriac? No? Well apparently that’s just me ha ha.

Screenshot 1:11:2015 9:06 amI’ve had increasing fatigue for the past 2 months which has now got me asleep for 12 out of 24 hours. I’m also breathless and giddy at times. I KNOW… I over do it and I have the house on the market and so forth but guess what? I’ve always over done it and I’ve never lacked energy in my life. Right now my fatigue is worse than when I was on chemo. 3 months ago I was walking 40+ km a day in the heat all over Europe!

So I have dragged my reluctant self to the GP and he has done a series of blood tests. Then he heard ‘something in my lungs’ so I had a chest X-ray which is clear (YAY!). However… my liver function isn’t so good and my ECG wasn’t good either.

In the past I’ve had excellent heart test results so you might think that strange but I was told that because of my breast cancer being on the left side, the radiotherapy can damage the heart. So that’s a possibility but who knows.

Next week I have a liver CT scan and a heart stress test. Sigh. I’m sure you all know the feeling… part of me wants to find out what it is out of a need to know what’s going on but also I don’t want to seem a fraud. How silly! The other part wants it to be NOTHING. If it’s nothing why am I so sleepy and giddy? Maybe it’s love. The MOTH is pretty cute;)

I feel embarrassed to be such a medical maniac so I’ve only told my closest friends and family because they can face palm and roll their eyes at me and I can just tell them to ‘get over their bad selves’.

So… if you were wondering where my blog had gone… it went into the land of question marks. Nothing to report but hopefully I’ll know something by the end of next week. Otherwise, back to the oncologist to get more tests. Boo

On a happy note… my hair is like a giant curly frizz ball. At least I have hair and if I can con my hairdresser into straightening it I look quite ‘normal’. PLUS… I am waiting to have my breast reconstruction done. They will build me a new one out of my stomach and ‘fix’ the other one to match. I’ll be frolicking on the beach in my bikini in no time.

Oh and I can’t miss a chance to show you our house on the market. We have worked so hard to get it looking presentable. I’ve set my art room up as an ‘open studio’ and got commission jobs from yesterdays open for inspection. Ha ha. I’m a marketing queen.  http://www.realestate.com.au/property-house-vic-warranwood-121100646

Relay for life

It’s been a while and I’ve neglected the blog a little. To begin with, I’ve had a nasty hip problem keeping me awake at night. I don’t want to go on about aches and pains but I understand how concerning it is when a ‘new pain’ starts up and all the tests have to begin again. Over the past 3 weeks I’ve had bone scans, CT scans and many trips to the doctors. Monday I’m off to have an ultrasound. My GP is very sure that the left hip is bursitis and that is treatable with a shot of steroids. YAY! I’ve got bursitis! How exciting. Better than the alternative.

However… I also have a 4mm ‘spot’ on my right hip. This isn’t concerning me but I have to have another CT scan at the end of May to see if it’s grown. I can’t have an MRI because I have metal in the breast tissue expander. So on the 26th of May I find out the results. THIS IS THE DAY WE FLY TO EUROPE FOR 8 WEEKS. Doh! Seriously, I am not going to worry about every little ache and pain… or spot for the next 10 years.

Relay for life

Tonight I’m sharing my story to 2000ish people at the Greensborough ‘Relay for life’. It’s my 2nd public speaking engagement and not the last as I have another booking in May. My story seems so boring and not unusual as cancer touches so many. Hopefully I will be able to inspire people and help them to see that the big ‘C’ word can be life changing in a positive way.

I’ll upload my speil for you to read some day!

Dishmoptop makes a comeback!

Hey I have a hairy head coming! My head is the only place it’s growing so I’m guessing the Nioxin hair booster is doing it’s trick. I still have no eyebrows but I’ll continue to draw them on (badly) as before. The hair on my head is WHITE and the texture of cotton wool. I might end up with a white ‘fro’ at this rate as my hair was already curly and most people get curly hair after chemo. At some point I’ll shed the wigs (which confuse people enough as it is) to my new hair. I’ll be glad for the cool air.

Just to give you an idea, I look like this except my hair is only about 5mm long:

Radiotherapy is going as good as expected.My friend Jan, who works at Pharmore in Croydon is my helpful expert on products. She is trained up on ‘Moo Goo‘ so I’ve been using it to prevent burns and to stop my skin from shrinking. It’s a fantastic product and it’s AUSTRALIAN. It was originally used on cow udders. I’ll leave the irony with you to figure out. The nurse at radiology was very happy with me using it as I can’t use anything with perfume, alcohol etc in it and I need to apply it 3 times per day. I’ve mostly had 8.15am daily appointments which is just what I wanted so I’m doing a happy dance about that.

Last week I had a burst of extraordinary energy. It was like I’d been drinking Redbull or something. I cleaned out cupboards, re-arranged furniture and began illustrating 3 children’s books at the same time.

Now the fatigue from radiotherapy is beginning to hit and I’m back to wanting sleep. At least I had a week of being my old ‘propeller head’ self. I suspect the MOTH is a little relieved because my energy usually involves work for him he he.

 

Squeaky bits

Thank God for wigs

Thank God for wigs!

The MOTH told me that if he bought a boat he would name it after me: ‘Gone with the wind’. I’m not sure which part of me he was referring to but I think he meant the departure of ‘leftie’.

Speaking of ‘gone with the wind’, my hair is refusing to grow back. The first two types of chemo I had it started growing back prolifically after 4 weeks. Now 6 weeks after Carboplatin and Taxotere my hair is STILL FALLING OUT! Well I did the stupid thing and checked Google. There is a group of angry women out there who were not told that Taxotere can cause permanent hair loss. Some people found it was very slow and took years to get a light crop of hair. Others have permanent hair loss.

Screenshot 29:12:2014 4:05 pmOf course, life is more important than hair but sometimes it doesn’t help women to re-gain their self esteem and get back to normality. The hair I have left has gone white and like cotton wool. It’s sparse and like I said, still falling out.

I REFUSE to believe that my hair won’t grow back. It’s usually like a blackberry bush. Strong and prolific. I’m hitting it with $140 worth of Nioxin hair booster which I put on in the shower. Then when I rinse it off it washes all over me so I hope I don’t end up like a gorilla!

Squeaky bits

Since my tissue expander is now dislodged and no longer attached to my muscles I can move it around. OK. Don’t think about that too much. The weird thing now is that It SQUEAKS!

My dear friend Gail gave me a loving big hug yesterday and I got the giggles because it squeaked.  I had to demonstrate it to her to explain why I was laughing. She is very impressed. I think she wants one too.

Sigh. How am supposed to soar like an eagle?

Radiotherapy starts tomorrow at 3.30pm. I hope my bits don’t squeak. It would almost be as embarrassing as last week when I went there and discovered the glitter from my Christmas table cloth had fallen into my bra. The radiotherapy guy didn’t mention it and so neither did I.

Whoever thought cancer could be so amusing?

Strange Christmas gifts for me

All I want for Christmas is 3 tattoos and a breast inflation. Apparently that’s what I’m getting.

Yesterday I had an appointment with my new Radiotherapy specialist at Ringwood Private. He was more rapid firing than my Dr at Maroondah but seemed very thorough and in a rush to commence the program. I begin radiotherapy on the 29th of December. I was hoping to have a break and begin late January but at least I will get through the treatment sooner this way and spend some time recovering before we go to Europe in May.

On Christmas Eve I have my last ‘breast inflation’ appointment at Maroondah where Dr Grim (not his real name) will advance on me with the largest syringe on the Earth and inject 75ml into the tissue expander. That will be my last one yay! Later in the day I go to Ringwood Private to have 3 tattoos and a CT scan to prepare for the radiotherapy. I hope the tattoos are something cute. I rather fancy an owl or something. So Christmas Eve will be spent in hospitals and not preparing for Christmas day at my place!! Oops. At least I’ll have tattoos.

While they are there I could get this tattoo on the back of my head. You like? My hair is still falling out so I’m not expecting long locks for Christmas at this stage.

The doctor decided that I need 33 treatments rather than the original 25 as I have had a big gap between surgery and radiotherapy and I am high risk of the cancer spreading to the chest cavity. So that’s every day except weekends for 6 weeks or so. Ho hum. What’s a few more weeks in the scheme of things?

Oncology nurses are angels

I can’t thank the staff in the breast clinic and the oncology nurses at Maroondah enough. Having chemotherapy is frightening for many people but they made something which can be fraught with fear and anxiety, a supportive and caring place to be. They are always concerned and kind but they are also fun and friendly. They go over and above their call of duty and run their little legs off all day supporting people who can be at many stages of grief or anxiety.

I’ve heard many cancer patients find it difficult to move from this supportive environment to ‘being alone’ and I can understand why.  Having had chemo for 8-9 months now they have become a part of the family. The staff walking the journey at your side is really important and stepping away from that can be a little daunting for the patient and their partner.

To top it off, the MOTH has teased the daylights out of them for the past 8 months. Perhaps he will finance their self esteem building sessions.

Feeling unravelled

Screenshot 17:12:2014 8:53 pm

Please don’t ask me what goes on in my brain. Col says my brain scares him. This week I did a series of 4 greyhounds who are looking rather ‘unravelled’. I sold 3 of them before they were finished. I can identify with them in that I am tired, I have various aches and pains but I’m still running towards the finish line. I am not skinny though!!! Stupid breast cancer chemo all has ‘weight gain’ as a side effect. Not to mention all the eating I’ve been doing but let’s blame the chemo.

Actually I think I am less tired but with all the Christmas celebrations I don’t feel it. This morning I actually did some RUNNING on the athletics track. It wasn’t much but enough to start getting my fitness back. Hopefully I’ll be able to get out of bed tomorrow without the resulting sore muscles.

I’ve been asked many times where people can see my artwork. At the risk of seeming self promotional…

Facebook page https://www.facebook.com/jennywoodart

Website http://jennywoodart.com/

Ah Magoo you’ve done it again

Week two after chemo I’m usually starting to feel pretty good but this week I’m full of side effects. They aren’t new… Just lasting longer. Some say ‘it’s about time’ but I say BOO HISS.

  1. I have chemo brain galore and have messed up 2 events this week… one being a very important medical appointment. I was so cross with myself for missing it and now I have to wait 3 weeks for another appointment and that will be at Peter Mac.
  2. My muscles have gone into meltdown. They even go to jelly climbing the front steps at home.
  3. I want to go to sleep all day long. I have restricted myself to 2 hours in the afternoon.
  4. My vision has gone weird. I can’t see long or short distance very well and given that I usually have perfect long vision this feels pretty strange. I hope my artwork is as good as it looks through my eyes or I will be very embarrassed. I’ve turned into Mr Magoo.
  5. I’m seeing eye floaties. They are little black puffs of smoke that look so clear and real that I keep trying to catch them. My friends at the dinner table the other night were giving me strange looks. You would think they would be used to my oddness wouldn’t you? I thought it was a cobweb coming from the ceiling. Someone’s going to put me in a straight jacket.
  6. The muscle around my left eye twitches constantly.
  7. I still have a very strong metallic taste in my mouth and food isn’t as good as it looks or smells. Usually this goes by week 2.
  8. I feel cold constantly. That could be handy when the Summer arrives.

I went and did my Les Mills Body Balance class today for the first time in 2.5 months and made it through the hour session but it was disappointing. Tomorrow is my running day with my friends so let’s see how fast I can hobble!

Hopefully week 3 will give me a break from side effects. Then, on Dec the 9th,  I have MY LAST CHEMO. Providing I remember to go. Yippee.

The MOTH survives more injuries

Bargara beach

Chilling at Bargara beach

We are back from a wonderful 2 week holiday at Bargara in QLD. It was possibly the best holiday ever… mostly because we both needed it so badly. Having the beach 20 steps from the door at our resort and the golf course out the back suited us both fine. The MOTH came packed with his golf clubs with his bare essentials stashed amongst them. Who needs clothing in QLD? I was almost as bad as my case was filled with art supplies. I am a very light packer when I travel so we had one small suitcase between us and a set of golf clubs (plus 2 carry on bags).

Screenshot 19:11:2014 5:45 am 2Our friends Tony and Lorraine spent the first week with us and we took a day trip to Fraser Island and a few other wonderful and not so wonderful trips pioneered by our ‘tour guide’- The MOTH. It was lovely to spend time with them once again on our holiday and share hysterical laughter.

The MOTH and his injury collection

I totally forgot I was a cancer patient (well almost) and Maroondah hospital seemed so far away. I love the beach and ended up tanned and relaxed. Sigh.

Col feeding the exotic fish at the waterhole outside our resort.

Col feeding the exotic fish at the waterhole outside our resort.

THE MOTH… on the other hand… had injuries almost akin to his splinter episode.

  1. He played so much golf that he became very sore all over. At one point he climbed into a plane at the Hinkler museum and became wedged half way because his muscles wouldn’t do what they set out to do. He had a panicked expression on his face which I could do nothing about apart from laughing.
  2. He walked on hot concrete without his shoes on and got two 50c piece sized blisters on his heels. At one point he couldn’t walk and I had to stab the blister with a pair of nail scissors to drain it.
  3. He got badly blistered and painful calves from ‘golf’ sunburn.
  4. He was and still is, covered in sandfly bites.
  5. He got stung by a wasp on the hand and further up his arm while looking for a golf ball in a bush. This resulted in severe swelling and itching.

I considered calling 000 but I was too busy reading my kindle on the beach. Do the ambulance come for self inflicted wounds?

Art therapy

Prior to leaving I finished illustrating a childrens’ book for Jojo media (a book publisher) which was great to get behind me.

I managed to finish off 5 commission art jobs while on holiday and quite a few pieces of my own. This might sound like I was working but believe me… it’s quite the opposite! I go into some kind of trance when I’m doing my artwork and it’s the ultimate relaxation. One of the pieces I finished was inspired by a magical experience we had watching a massive turtle come up onto the beach and lay it’s eggs. I think it was up there with the most wonderful thing we’ve ever seen. It didn’t have cogs and wheels like my art piece but you know how my brain works. Colin thinks my brain is terrifying.

Medical news

My hair is falling out for the 3rd time. Just when it starts to get about 1 cm long or so I start another chemo round and off it goes again. Each time it grows back it’s a different colour. Unfortunately it’s white and snowy this time so I’m happy to wave it goodbye.

You’ll be pleased to know that I managed to run 2-4km on alternative days… often on the beach. I didn’t run very WELL because my fitness has gone downhill since surgery but it’s a start. At one point I was overtaken on the beach by a guy dragging a car tyre  along behind him. Maybe I need one of those. Apparently they make you run faster:)

Chemo day drawing

Chemo day drawing

Yesterday I returned to the chemo factory for another dose. I’m totally creating my own world. The doctor told me that they have me written down for 6 extra doses of chemo, rather than the 4 we agreed to because I am tolerating them so well. Colin and I both said ‘no’ in unison. The Dr agreed that there is no evidence it is doing any good and that it’s just to make sure. Enough is enough. Do I keep taking it until I’m not tolerating it anymore? I don’t know, but we have no way of measuring it now. Besides… I might be ‘tolerating it well’ but I do feel very unwell after it, of course. It’s not like I’m just shaking my head and carrying on! Given that the last two chemo drugs didn’t work it’s difficult to say if this one is. I’ve had radical surgery and … I have 25 days of radiotherapy after Christmas and the break in between will be much appreciated. 9 months of chemo is ENOUGH.

I also refused to take the Dexamethasone (cortisone) all together. Last time I took it the 2 days before chemo, during chemo but not the prescribed 4 days afterwards. This resulted in a significant reduction in stomach pain and nausea. I had a very nasty sore mouth and throat which resulted in lots of ulcers but that’s bearable. In fact I didn’t need to take any anti nausea at all, just the usual 3 Somac for the stomach pain. Isn’t the purpose of cortisone to reduce nausea? Strangely enough it is a side effect in itself, as well as burning pain in the stomach. So I didn’t take it before my chemo yesterday.

So… the doctor gave me a double dose of cortisone in my chemo infusion yesterday so that I wouldn’t have an allergic reaction. THAT’S WHY I’M WRITING THIS BLOG AT 5am!!! I even took a sleeping tablet. I’m like an Eveready battery advertisement. My brain has gone totally haywire. At least the sleeplessness is only for one night.

My sister and Dad came to visit me yesterday in the chemo factory… partly because Dad had an appointment at Maroondah and partly because it’s like a party in there and we all have a lovely chat. The nurses get involved in our banter. One nurse told Colin he is the King of Bull @#$% and the receptionist told him to ‘be quiet get out of the room’ (or something similar). He invites all of this so don’t feel sorry for him. Of course they were only kidding. I think he will miss stirring them all up when I finish.

One more chemo to go (9th of December) whoot!!!

On a sad note, two friends my age have died this week. One was a female fellow cancer sufferer who has been fighting fiercely along side me. My heart goes out to their families and friends, particularly their wifes/husbands and children. On that note… kiss your loved ones today and live your life with integrity. xx to you all from me.

My thoughts on ‘being positive’

I hesitate to write this post because I understand how difficult it is for people to find words for others who are suffering. There are websites with advice on ‘what to say to cancer victims’, with bullet points on what to say and what not to say. This makes any sentiments seem contrived in my opinion. I just appreciate any support and I am not that sensitive to be offended by words, although I have had some ‘interesting’ things said to me!

me

My new ‘hair’ *wink*

I’ve been so touched by kindness, especially from those who find it difficult to express themselves. Several men in my life, have emailed me with messages saying ‘I’m not good with words in these situations but I want you to know that I care and I’m following your blog”. Knowing that they find it difficult and yet still reach out and express it is so brave. Many others have found it so difficult they haven’t contacted me at all. In saying all of that, why would I now criticise people for making the effort?

‘Be positive’ is a common thing to say to people and of course it is well intended. If a person going through bad stuff is positive it makes others feel less awkward and it helps people to see their way through tough times. We all know about ‘the power of positive thinking’ but positive people still die and bad things still happen to them. It’s not in our own hands to be as positive as possible in order to have a life with no downsides.

Is it a healthy thing for people to say ‘be positive’ to those who are experiencing deep grief, depression or health issues? Robin Williams comes to mind as an example. From a child he recognised that being funny and upbeat won people over. It made people feel good. The response when you say ‘I feel ghastly and I don’t want to live’ is very different to the response when he covered it up and behaved in a way he wasn’t feeling. Can people just ‘be positive’ like that? Can you just flick a switch like that? I don’t actually know the answer.

We all have a ‘default setting’ and mine just happens to be ‘positive’. It’s just the way I was made. I take no credit for it. I don’t try hard or make an effort to change my thoughts. I don’t know what it’s like to be in a black pit. I embrace change and pioneer change myself. I love an adventure. If I was depressed and someone said to be positive would that work?

Anyone who knows me well knows that I defuse negative things in my life with humour (usually black) but I will also plunge into very confronting reality and express my frustrations and issues if that’s where I’m at. I don’t cover how I’m feeling intentionally by making myself feel something I don’t. Joy and peace is more desirable to me than happiness and positivity. I don’t chase happiness. I just feel happy because I am.

The MOTH (Man Of The House) has a different ‘default setting’ to me. We speak an entirely different language and yet we complement each other and have grown to be more like each other over the years. Here is an example of a conversation this week…

Me: Our garden is looking amazing considering you hacked it back to bare roots only 4 weeks ago. Have you seen all the flowers coming?

MOTH: No I can’t say I have

ME: Really?

MOTH: I have noticed all the weeds that are growing through the mulch. I’ve had to pull them out all week.

Me (incredulously): You noticed the weeds but not the flowers?

That makes me sound like an airy fairy hippy and him like a realist… but you get my drift don’t you? That is his default setting. He is aware of it and he tries very hard to ‘be positive’ but his real joy and happiness doesn’t come from ‘trying hard to be positive’.

Colin’s family of origin is entirely different to mine. Although his was comparatively lacking in drama such as my own, his father was a prison officer for 40 years. Surely you can imagine his childhood without me going to great lengths to describe it.  They both loved him but their parenting style was more traditional (for our generation) than mine.

mum and dad

Mum with our knight in shining armour

On the other hand, I didn’t have an ideal childhood by any means. Life has been tough in so many ways. I lost my Dad when he was 23 years old and my Mum when she was 54. My father was a teacher in the middle of nowhere, Pyramid Hill. My mother married him when she was 19, had me at 20 and was widowed at 21. This left her homeless, penniless and in deep grief. We moved around from family home to family home until our knight in shining armour (Dad) saved us and married my mother. Mum told me this story as a small child as though it was a fairy tale. One day she told me I was the child in the story and I thought it was wonderful. That is an example of her approach of creative parenting.

They then had another 3 children in as many years… 4 daughters in 5.5 years. My new Dad was and is such a wonderful man and has always treated me as his own. I loved and still love him very dearly.

I promise I grew out of my witchcraft costume.

I promise I grew out of my witchcraft costume.

My parents weren’t perfect by any means but we were not hit or smacked as children and mostly had to ‘discuss’ our actions and figure out how to be better people when we had acted inappropriately. I would have chosen a smack any day. Being responsible for your actions is really tough. I used to stand there thinking ‘just smack me and get it over with’.

Because of this, I grew up with the ability to articulate my feelings and answer for my behaviour. I had deep love and respect for my parents through thick and thin. It hurt me more if they said they were disappointed in me than if they had hit me. There were no cop outs or easy solutions. My recollections of my childhood are all good. I don’t have any/many bad memories and no bitterness. I inherited my mothers ‘Pollyanna’ approach to life. Admittedly, this often annoys my children and The MOTH as it did me with my own mother.  Seeing things from the other persons point of view isn’t always what you want to do when you feel angry or hurt!

Mum was my best and closest friend as well as a role model in my life. She was a beautiful Christian woman with a heart of gold, a funny and mischievous nature, a mountain of wisdom and a whole pile of flaws as well. I could carry on with the list of injustices life has thrown me, just like anyone can. I have known deep suffering. I have needed to grieve like anyone else and struggled at times to see the flowers in the garden.

So does ‘being positive’ make me a hero? No. I am just being who I am. I am a result of my own upbringing and watching how my parents approached bad things happening in their life. They disciplined me with love and Mum role modelled to me her way of dealing with stuff. She talked about things a lot with a smattering of black humour. Well… more than a smattering.  We often got the giggles at the most inappropriate times. Of course I recognise that this trait for seeing the silver lining could also be an inherited personality.

My joy comes from my ‘positive default self’ but also from my faith which gives me the peace and self worth that I need to battle on with things. I have a crystal clear purpose for my life and know that whatever happens to me I will be ok. I believe I have had more positives from this illness than badness. That’s a pretty huge statement to make isn’t it?

Screenshot 17:10:2014 9:37 amThat’s why chemo, chemo and more chemo… with a little surgery and radio therapy thrown in aren’t going to knock me flat. It’s got nothing to do with trying to be positive. I worry for others who have cancer and a tendency for depression. Putting on that smile to make others happy can be very tough.

In saying all of that, I DO appreciate your sentiments very much and I would hate it if you felt too afraid to speak now. Say what you like. It’s better than saying nothing. I won’t judge anyone who says ‘be positive’. I know it’s just a way of expressing feelings and besides, I already do feel positive… except when I feel like chucking up after chemo!

Feel free to leave a comment and tell me what you think. I’m no psychiatrist!