jennywood

Breast cancer post #4

Woo hoo I’ve finally found some information on the clinical trial I’ll be taking part in that isn’t written in gobbleldy gook!

If you’re interested, have a read. It’s actually quite ground breaking treatment for a type of cancer which previously had little hope. The article is referring to the ‘guinea pig’ phase, which is different to what I am doing as I am on a trial phase. The trial phase is the last step before they implement this strategy as a standard treatment for people with Triple Negative Breast Cancer (TNBC). http://www.breastcancer.org/research-news/20101005-3

This article on Triple Negative breast cancer is also informative but written in plain speak: http://www.breastcancer.org/symptoms/diagnosis/trip_neg/behavior

I begin treatment on Tuesday the April 1st (April Fools day), providing all the tests are done and the paperwork sorted in Italy (!) by then. In the meantime I’ll be doing more tests. Yay! Not. So I will be put into a randomized group and get one of two Nab-paclitaxel type drugs. So group A uses one Nab-paclitaxel drug and group B uses the other. I will know which group I’m in but I can’t choose. Then after that treatment I will begin standard chemo treatment and then surgery and radio therapy.

Sounds like a plan?

Keeping positive

People keep telling me to keep positive but how am I supposed to do that when I have Triple Negative breast cancer? That means I need to be triple positive just to be neutral so that’s a lot to ask LOL.

Actually… I am feeling ridiculously positive. Not that I’m in denial, it’s just that I have absolutely no doubt I’m going to kick it. That could be the power of prayer and being surrounded by such amazing friends and family and whatever other reasons we can come up with but it just isn’t in my radar not to kick it.

My Mum was my age when she got cancer (53) and died at 54 a few months later, so that’s a bit scary but I will not let that take over me.

It might be called Triple Negative but I’m feeling triple positive.

Screenshot 19:03:14 9:51 PM-2

I finished this artwork yesterday. It was started in the middle of the night about 5 days ago and reflected how I felt at the time. The dead of night does that to you. Although it isn’t a reflection of where I’m at right now, it does highlight that first couple of days where I wanted to curl up in a ball. When I look at it now I remember the feeling but it isn’t something I can identify with (today).

I’m sure that as I go along I’ll meet an array of different feelings. Maybe my positive hype will wane a little when I’m in the middle of Winter (urgh), chemo and the long haul is still ahead.

My brain is already in a kind of fog. It feels like the world is rushing by me and I’m here in my foggy place. To top it off I have to come off HRT which is a bit nasty and bound to make the fog worse. Has anyone got an anti fog machine?

Todays funny MOTH story

Sorry MOTH… but you do keep me (and everyone) entertained. As a typical MFB firefighter, he is used to getting a ribbing. It’s all part of the culture. So I’m sure he can take it and he knows I love him dearly. Now on with the story…

You know he doesn’t like sitting still right? Well hospital appointments are our new worst nightmare. I’m about to make him an activity pack for our waiting times. Colouring books, pencils, snacks and Valium. Oops… sorry I didn’t mean Valium that just slipped in there.

This week, he was sitting on a bench seat in the radiology waiting room and a woman came up to him and said ‘could you please sit still as your jiggling is making it hard for me to send a text message’. 

Some people just need a perfect world LOL.

2013 Trip to the UK

Leaving on June the 11th 2013, we plan to explore the UK by car in a leisurely 8 week stroll, typical of us Australians who spend so much time and money getting over there we want to make the most of it.

24+ hours in a plane? ‘Aint nobody got time for dat!’

We are excited to catch up with a friend in London and my cousin in Ireland as well as lot’s of time on our own exploring the castles and remote areas including the islands off Scotland. We’ve booked a thatched roof cottage in ‘Sneem‘ in the Cork country of Ireland on the coast out in the middle of nowhere so that should be interesting!

Here’s the itinerary for anyone following us on our travels:

  • 11th June: Leave for London- Arrive 12th
  • 15th June: Ludlow- England
  • 17th June: Filey- England
  • 21st June: Windermere- England
  • 25th June: Edinburgh- Scotland
  • 28th June: Nairn- Scotland
  • 5th July: Isle of Skye- -Scotland
  • 7th July: Oban -Scotland
  • 9th July: -Glasgow Scotland
  • 10th July: Fly to Dublin
  • 11th July:Waterford- Ireland
  • 13th July: Drimnamore (1.5 k from Sneem) – Ireland (no internet for a week… or shops… are there people there even?)
  • 20th July: Galway- Ireland
  • 21st of July: Drumshanbo- Ireland with my cousin Marisa!
  • 22nd of July: Skerries- Ireland (Dublin)
  • 25th July: Fly to Canary Islands- Spain
  • 1st of August: Fly back to London
  • 3rd of August fly home to Melbourne (arrive home at 5am on the 5th of August)